Quality of life in children between 7 and 11 years old with intellectual disability. Barranquilla 2017-2018.
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Abstract
Background: Intellectual disability occurs in approximately 3% of the world population, increase in the child population by up to 10%. Intellectual disability requires interdisciplinary intervention in different professional areas, medical, psychological, and educational services. Knowledge about the quality of life in these patients is the cornerstone in reviewing protocols, recommendations, and decision-making to focus on improving their quality of life. Objective: Evaluate the quality of life in children between 7 and 11 years old with intellectual disabilities. Barranquilla, period 2017 - 2018. Materials and Methods: Descriptive, prospective study with survey application; patients between 7 and 11 years of age diagnosed with some degree of intellectual disability, being followed up by neuro pediatric. The KidsLife Scale was applied, designed, and validated to assess children and adolescent's quality of life with intellectual disabilities. Results: The male sex reached the highest frequency of population with 61%, mean age 9.2 ± 1.4 years, 50% had a mild intellectual disability, the distribution by dimensions showed that for social inclusion, 69% had a <50 percentile, in self-determination 51% percentile ≥ 50, in emotional well-being 54% percentile ≥ 50. Conclusions: The quality-of-life index in children between 7 to 11 years of age with an intellectual disability presents lower 50th percentiles in 37%, which that demonstrates a perception of quality of life with some degree of deficiency, denoting itself primarily in the dimensions of self-determination, interpersonal relationships, physical well-being, and personal development.
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References
Fernández J, Calleja B. Retraso mental desde la atención primaria. Rev Cubana Med Gen Integr. 2002;39(4): 141-6.
Israel J, Valdespino L, Lugones M. Retraso mental y calidad de vida. Rev Cubana Med Gen Integr. 2005; 21: 1-7.
Moeschler JB. Medical genetics diagnostic evaluation of the child with global developmental delay or intellectual disability. Curr Opin Neurol 2008; 21:117.
Lao JI. Acercamiento diagnóstico y asesoramiento genético en el retraso mental. Rev Neurol. 2001;33:1S-6S.
Caro I, Pérez O, Barbosa V, Ortega I. Evaluación de la calidad de vida en niños entre los 7 a 11 años con retraso mental. Barranquilla periodo enero a diciembre de 2017. Tesis Unimetro 2018.
Gómez L, Verdugo M, Fontanil Y, Monsalve A. Escala KidsLife: Evaluación de la calidad de vida de niños y adolescentes con discapacidad intelectual. 2016;1-101.
Global burden of disease: 2004 update. Geneva, World Health Organization, 2008.
World population prospects: the 2008 revision population database: highlights. United Nations, Department of Economic and Social Affairs, 2009.
Salamanca-Duque LM, Mora-Anto A, Córdoba-Andrade L. Adaptación transcultural para Colombia de la Escala KidsLife para personas con discapacidad intelectual y múltiple. Rev. Fac. Med. 2019;67(2):2.
López I, et al. Retraso mental y calidad de vida. Rev Cubana Med Gen Integr . 2005; 21(5-6 ): 18-21.
Schalock, R. L. y Verdugo, M. A. Quality of life for human service practitioners. Washington, DC: American Association on Mental Retardation. A conceptual and measurement framework to guide policy development and systems change. Journal of Policy and Practice in Intellectual Disabilities. 2012; 7:71-81.
Schalock, R. L., Verdugo, M. A., Gómez, L. E. y Reinders, H. Moving us towards a theory of individual quality of life. American Journal of Intellectual and Developmental Disabilities. 2016;121:1-12.
Verdugo, M. A., Gómez, L. E., Arias, B., Navas, P. y Schalock, R. L. Measuring quality of life in persons with intellectual and multiple disabilities: Validation of the San Martín Scale. Research in Developmental Disabilities. 2014;35:75-86.
Gómez, L. E., Arias, B., Verdugo, M. A., Tassé, M. J. y Brown, I. Operationalization of quality of life for adults with severe disabilities. Journal of Intellectual Disability Research. 2015;59:925-941.
Carbó-Carreté, M., Guàrdia-Olmos, J., Giné, C. y Schalock, R. L. A Structural Equation Model of the relationship between physical activity and quality of life. International Journal of Clinical and Health Psychology. Advance online publication. 2015.
Claes, C., van Hove, G., van Loon, J., Vandevelde, S. y Schalock, R. L. (2010). Quality of life measurement in the field of intellectual disabilities: Eight principles for assessing quality of life-related personal outcomes. Social Indicators Research. 2012;98: 61-72.
Van Loon, J. H. M., Bonham, G. S., Peterson, D. D., Schalock, R. L., Claes, C. y Decramer, A. E. M. The use of evidence-based outcomes in systems and organizations providing services and supports to persons with intellectual disability. Evaluation and Program Planning. 2013;36: 80-87.
Wang, M., Schalock, R. L., Verdugo, M. A. y Jenaro, C. Examining the factor structure and hierarchical nature of the quality of life construct. American Journal on Intellectual and Developmental Disabilities; 2010;115:218-233.